Overall things are going well. I feel like my muscles are
strengthening with the physio exercises each day. I made it out the house for a
couple of little walks at the weekend and even got to church on Sunday.
I'm definitely gaining more independence around the house -
I'm no longer restricted to using the loo with the height raise fitted but can
carefully use the downstairs loo too.
I can wash up and load the dishwasher. I can pick up most
items off the floor most the time by doing a 'keeping operated leg straight out
behind me whilst bending the other knee manoeuvre'.
I'm still limited when it comes to the shower and need help
and also for getting things in and out of low cupboards.
I'm better with meal prep although spending too much time
standing up wipes me out and leaves my toes throbbing. My ankles have been very 'clicky' and painful though which i'm hoping is just an adjustment thing and that they will settle down. My left ankle in particular has never been great since my JIA first began but it hasn't been this bad for a long time. Even my knees are playing up when I do my physio excercises and they've always been fine before. I try to get my 2 sessions of more intense physio done in the mornings to get them out the way - the exercises using the bands and ankle weights. And then that leaves two more sets of the initial bed exercises and standing exercises that I still do 4 times per day.
I wish I could get out for a little walk each day but today it's wet again out there like it was yesterday and I find that I'm really fearful of a slip or fall. That's also the reason I am really fearing the school run too when that time comes as there is so much bustle up there with kids running around like crazy that I fear being knocked over.
Some days I feel really optimistic and positive whilst other
days I just feel bleugh and today happens to be a bleugh day.
Today I feel nauseous from lack of sleep. I dread the night
times and last night was one of those 'looking at the clock every hour' kind of
nights. I reckon I managed a couple of hours sleep during the night and then
after lying awake for hours afraid to move as I didn't want to disturb Richard
as his sleep has been suffering because of me, I finally managed about 30
mins more this morning once he was awake.
So I'm feeling so groggy that I can't even face doing my
first set of physio exercises this morning but I will do them because I know I
have to.
Granny is back in hospital which is a massive worry for us
all - I can see it on Richard's face and the children's faces just how worried
they are. I know she will be fine as she's the strongest person I know
but it is the not knowing what is causing the problem that is the
worry.
My dad is also in hospital right now and because he lives
further away visiting him is out the question right now for me so that is
another frustration.
Gosh it's all sounding miserable again which I don't think
it would have done if I'd written it after a better nights sleep.
I came off all my pain releif meds yesterday except for
paracetamol in the evening. Ive only got 1 more week of xarelto (riveroxaban) blood thinners
to take and I've found that by taking it straight after dinner around 6pm
rather than 10pm, my legs feel less agitated during the night. I'm still
feeling the heart palpitations when I lie down but the doctor didn't seem to
think that was related to xarelto. Either way I will be glad when I no longer
have to take that as then I'll stop the evening paracetamol too and see how I am without that.
Now it's time time to get up and yawn my way through
today.
------------
Here are a few notes from my 3 week milestone which never made it onto the blog yet...(I ended up sticking with the riveroxaban for now after all)Day 21 - 3 week update - tues 13th feb. pancake day! Physio Pain in ankle - esp left ankle. Given a stick for outdoors. For better balance - standing taller . Indoors ok without anything. Late evening. Loads of clunking in hip with every step. Dr called re switching from riveroxiban to apixaban- not sure what to do. Day 22 weds 14th Feb Took riveroxaban earlier last night and had better nights sleep. Also foot on a cushion after checking with physio to relieve heel sore pain.
Aww, I'm sorry you are having a bleurgh day, I'm sure things will be better soon. Losing sleep never helps, so fingers crossed you get a better nights sleep soon. I'm sorry to hear about Granny and your Dad, I hope they are well again soon. xx
ReplyDeleteWe were away for half term, so I need to catch up with your recovery posts. Sorry that today isn't a great day and to hear the extra stress for you all regarding Granny and your Dad. Hope they get better soon
ReplyDeleteSo sorry it was a bleurgh day, here is to many more cheery days when you feel like the op has been a positive and will make a real difference to your quality of life. Also really sorry to hear about Granny and your Dad, I'll be praying. Mich x
ReplyDeleteAh it sounds like a rough time, you are doing so well but I bet days like this make it all the harder, keep going Rebecca x
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